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07/10/08 |
         
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Welcome to our family website!!!Yep we live in Kansas and no we don't know Dorothy, Toto, or Clark Kent. I am sorry to say we don't even know where to get ruby slippers.Corey and I have been married for over 14 years, and have 3 boys ages 5, 9, and 13. The main purpose for this website is to keep our friends and family members updated on how our children are doing. Click on each persons name for more details on them and scroll down to see al the latest cool things that are going on. Don't forget to check out the cool media coverage for MPS awareness and for the latest update on all three kids click Update pageDarian
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This year for MPS Awareness Day Corey and I got gutsy and created an awareness video. We will soon have the video available right here!!! |
May 15th is
National MPS Awareness DAY!!! This day is set aside to
raise
awareness of these disorders, to honor the children who are fighting
MPS/ML and remembering those who have lost their lives because of it.
For more information on MPS/ML disorders check out www.mpssociety.org To learn about MPS/ML from a parents view visit our forum at www.lsdsonline.com. |
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A couple of my LSDS Online Forum family member's have made some awesome Photo stories..wanna see??? just click here |
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Photo Album |
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This site was last updated 07/10/08
Our 13 year old...our oldest, my first born, oh where oh where has time
gone??
Seth is our middle
child, our miracle boy. Seth has rare disorder called MPS IIA
(AKA Hunter syndrome) to learn more please visit
And Kent....well...Kent is 5 and he is trouble!!!! but he is
the cutest little pile of trouble I have ever seen. He had been asking for
this truck for 2 years!!!