| Forum |
Topics |
Posts |
Last Post |
| Notes to/from the Admin. |
|
 |
PLEASE READ
This section is for important information from the administrator. Please make sure to read all posts in this section.
|
1 |
15 |
Tue Sep 26, 2006 10:22 am
 |
|
Having Problems?
If the forum isn't playing nice...please post questions about it here.
|
21 |
118 |
Fri Mar 13, 2009 3:50 am
|
| General Support |
|
|
New Members
Welcome to Lysosomal Storage Disorders Support.com!! Here is where you can tell us all about yourself, your family, and the person in your life who is affected by a Lysosomal Storage Disorder.
|
52 |
588 |
Thu Dec 04, 2008 7:29 am
|
|
Diet/Nutrition/Supplements
Got a question, idea, or comment about how Diet/Nutrition/Supplements might effect or benefit our kids? Post it here.
|
43 |
296 |
Sat May 23, 2009 3:23 pm
|
|
The Break Room
This is the area for anything at all. Funny stories, Birthdays, Jokes, or just general everyday issues... So grab a cup of coffee and come on in!
|
528 |
4504 |
Wed Jul 01, 2009 7:23 pm
|
|
Educational Issues, Therapy and Assistive Technology
This is the place for School issues (IEP's, teachers, FAPE, IDEA, etc..), issues with OT/PT/speech etc, and where you can discuss assistive devices (Bath chairs, Vail beds, Wheelchairs etc..).
|
69 |
613 |
Tue Jun 09, 2009 8:14 am
|
|
Website Resources
Over the years of being LSD families, we have all ran across websites or articles that were incredibly helpful. Here we can all share these resources with each other. Just put in the subject line what the website or the article is about then post a link or copy small articles in the post.
|
42 |
135 |
Tue Mar 24, 2009 11:07 pm
|
| Mucopolysaccharidosis (MPS) specific support |
|
|
What is MPS?
MUCOPOLYSACCHARIDOSES. Here you will find a brief description of each MPS disorder.
|
1 |
3 |
Fri Sep 08, 2006 6:49 pm
|
|
Medical Forum
This section is for medical issues relating to Mucopolysaccharidosis. You can post Questions, comments, and advice on Medicine (OTC and prescriptions). Disclaimer: We are parents not doctors and this area is only Parental advice and not to be considered medical advice from medical professionals. Please take all advice given here to your doctors before altering any regimen. As a public forum, lsdsonline.com cannot be held responsible or liable for advice given or how it is used.
|
461 |
4375 |
Tue Jun 16, 2009 7:50 pm
|
|
Research, New Developments, ERT, Family Gatherings and Conference updates
The name says it all!! Post or ask about ERT, new research, Family Gathering info, and conference stuff here.
|
159 |
1226 |
Mon Jun 15, 2009 5:53 am
|
| Multiple Storage Disorders specific support |
|
|
What are MSD's?
Mulitple Storage Disorders. Here you will find a brief description of the different types of MSD's.
|
1 |
1 |
Wed Sep 06, 2006 7:33 pm
|
|
Medical Forum
This is the section for medical issues relating to the different types of Multiple Storage disorders (MSD): Mucolipidosis (ML I, II, III), Multiple sulfatase deficiency, and Schindler’s disease. You can post Questions, comments, and advice on Medicine (OTC and prescriptions). Disclaimer: We are parents not doctors and this area is only Parental advice and not to be considered medical advice from medical professionals. Please take all advice given here to your doctors before altering any regimen. As a public forum, lsdsonline.com cannot be held responsible or liable for advice given or how it is used.
|
0 |
0 |
No Posts |
|
Research, New Developments, Family Gatherings and Conference updates
Post all new and existing research, IVF, Pamidronate, BMT, Family Gatherings, Conference updates and new developments available for Multiple Storage Disorder's here.
|
0 |
0 |
No Posts |
| Sphingolipidoses specific support |
|
|
What are Sphingolipidoses Disorder's?
Hee is where you will find a brief description of the types of Sphingolipidoses Disorders.
|
1 |
1 |
Wed Sep 06, 2006 9:08 pm
|
|
Medical Forum
This is the section for medical issue relating to: Gaucher disease, Niemann-Pick disease, Fabry disease, Farber’s disease, Gangliosidoses 1, Gangliosidoses 2 (Tay-Sachs disease, Sandhoff disease), Krabbé disease, Metachromatic leukodystrophy, and Wolman’s disease. You can post Questions, comments, and advice on Medicine (OTC and prescriptions). Disclaimer: We are parents not doctors and this area is only Parental advice and not to be considered medical advice from medical professionals. Please take all advice given here to your doctors before altering any regimen. As a public forum, lsdsonline.com cannot be held responsible or liable for advice given or how it is used.
|
0 |
0 |
No Posts |
|
Research, New Developments, Family Gatherings and Conference updates
Post all new and existing research, Family Gatherings, Conference updates, and new developments available for Sphingolipidoses here.
|
5 |
6 |
Sat Feb 14, 2009 6:29 pm
|
| Glycogen storage Disorders |
|
|
What are Glycogen storage Disorders?
Here you will find a brief description of Type III, Pompes Disease.
|
1 |
1 |
Wed Sep 06, 2006 10:08 pm
|
|
Medical Forum
This is the section for medical issue relating to: Type III (Pompe’s disease). You can post Questions, comments, and advice on Medicine (OTC and prescriptions). Disclaimer: We are parents not doctors and this area is only Parental advice and not to be considered medical advice from medical professionals. Please take all advice given here to your doctors before altering any regimen. As a public forum, lsdsonline.com cannot be held responsible or liable for advice given or how it is used.
|
0 |
0 |
No Posts |
|
Research, New Developments, Family Gatherings and Conference updates
Post all new and existing research, Family Gatherings, Conference updates, and new developments available for Lipid storage disorders here.
|
0 |
0 |
No Posts |
| Glycoprotien and/or Lipid storage disorders |
|
|
What are Glycoprotien and/or Lipid storage disorders
Here is where you will find a brief description of Glycoprotien and/or Lipid storage disorders.
|
1 |
1 |
Wed Sep 06, 2006 10:13 pm
|
|
Medical Forum
This is the section for medical issue relating to: Fucosidosis and Mannosidosis. You can post Questions, comments, and advice on Medicine (OTC and prescriptions). Disclaimer: We are parents not doctors and this area is only Parental advice and not to be considered medical advice from medical professionals. Please take all advice given here to your doctors before altering any regimen. As a public forum, lsdsonline.com cannot be held responsible or liable for advice given or how it is used.
|
0 |
0 |
No Posts |
|
Research, New Developments, Family Gatherings and Conference updates
Post all new and existing research, Family Gatherings, Conference updates, and new developments available for Fucosidosis and Mannosidosis here.
|
0 |
0 |
No Posts |
|
|
All times are GMT - 5 Hours |
| Who is Online |
 |
Our users have posted a total of 17318 articles
We have 1 registered user
The newest registered user is mps2mom
|
In total there are 0 users online :: 0 Registered, 0 Hidden and 0 Guests [ Administrator ] [ Moderator ]
Most users ever online was 88 on Thu Jun 28, 2007 7:14 am
Registered Users: None |
| This data is based on users active over the past five minutes |
 |
New posts |
|
|
No new posts |
|
 |
Forum is locked |
Powered by phpBB © 2001, 2005 phpBB Group
|
|
